DILANTIN Reviews (PHENYTOIN SODIUM)Average Rating: 3.5 (185 Ratings)Filter ResultsCompare DILANTIN with similar:
Type: Rx Drug
|
Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on DILANTIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR DILANTIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Eclampsia | My gums are much worse, I have a lot of joint pain - especially feet, arms, hands, and pelvic. I don't have any long term memory loss, but definitely short term. I'm back to work and I have to ask to be retold things I was just told (I'm trying to be better at writing everything down). I also can't come up with the word I'm looking for many times or inadvertently call things by the wrong color, etc. I've had blurred vision and eye spasms. I get off balance walking or standing up. I'm drowsy all the time. | I am 31 years old and was pregnant at 32 weeks when I had a seizure, accompanied by a minor stroke, due to acute Eclampsia. I had a second seizure a few days later while still in the hospital. I was originally put on 800mg (400am. 400pm) and was decreased to 600mg (Which sounds like a lot according to everyone else? I've been on it for 4 months. I've been experiencing some issues and was curious to see if related to Dilantin. Many of my issues sound similar to yours. Thanks for sharing. My neurologist wants to a drug that is better tolerated, but can't right now due to a hemorrhage on the brain that has not dissolved. | F | 31 | 4 months | 5/10/2007 | 3 | temperal lobe epilepsy | sleepy all the time, memory loss, slurred speech | My mother is actually the one who has temperal lobe epilepsy. She has moved in with me because she wrecked her car while having a seizure. When she wrecked 2 months ago her dilantin level was 2.5. Now after still taking the same dosage it's 32. It's out of control. She's been taking dilantin for around 10 years or so but she's considering switching to something else. Any suggestions? | F | 52 | 10 years | 5/3/2007 | 5 | epilepsy | None | Has anyone else experienced breakthrough seizures while on Mylan's generic version? Have you contacted Mylan or FDA about this? Contacted an attorney? | F | 28 | 10 years | 3/21/2007 | 5 | epliepsy | some light headedness | Stay with the original brand. After being stabilized on Dilantin for 43 years, a change to the generic brand, Mylan, 2 years ago caused seizures to re-occur. There is a lot of information about Mylan not providing the same blood levels - mine were 1/2 what they should be. So be careful if your Dr. (or Insurance Co.) tries to change you to the generic form, Mylan. | M | 57 | 43 years | 3/11/2007 | 5 | epilepsy | My side effects are very minimal - no changes in hair, no gum changes. Fatigue,depression - but I never related these to dilantin. Memory loss and eye-to-hand coordination problems in last five years - but i AM over 50, and these things happen with age! | I'm so glad its there. It contols my nigthtime grandmal seizures. I taken Lamictal for partial complex seizures (lapses of consciousness,inabilty focus/speak clearly)- that drug is a wonder also. Have had to increase doses over the years. | F | 52 | 19 years | 2/26/2007 | 4 | Epilepsy | You get drowsy,uncordinated,dissoriented(sometimes). Also for me made it very hard to drive long distances, stay out late. | At first it worked with out a hitch but after 5 yrs of taking it I have developed worse and worse symptoms every year. Driving is becoming bothersome and drug seems to drop after 12hrs instead of the 24 its supposed to work. | M | 21 | 5 years | 2/5/2007 | 5 | I had two seizures within 3 months | Occasional slight dizziness, but rare. | This drug has put my mind at ease about seizures. However, it has really rated high with my wife ! She observed both seizures I had while I was asleep. Scared her near to death, but had the presence of mind to call the EMT's. During the 2nd seizure I dislocated my left shoulder. Since taking 300 mg of Dilantin per day, I feel relaxed and at ease about not having to worry about future seizures. The V.A. has taken great care of me to insure no further seizures by continuing to prescribe Dilantin. | M | 65 | 4 years | 1/26/2007 | 5 | I had two seizures within 3 months | Occasional slight dizziness, but rare. | This drug has put my mind at ease about seizures. However, it has really rated high with my wife ! She observed both seizures I had while I was asleep. Scared her near to death, but had the presence of mind to call the EMT's. During the 2nd seizure I dislocated my left shoulder. Since taking 300 mg of Dilantin per day, I feel relaxed and at ease about not having to worry about future seizures. The V.A. has taken great care of me to insure no further seizures by continuing to prescribe Dilantin. | M | 65 | 3 days | 1/26/2007 | 5 | drug reaction siezures | I had a seizure 10 yrs ago and no cause was really confirmed; it was either lack of sleep or sulfur based drug. A few months ago I had a massive seizure, actually two, the second being caused when the doc took me off of oxygen for a c-scan. I found out that a few days earlier I'd been given a drug that I never should have been given. Ultram 50 is known to cause seizures and overdosing on it also increases it. The recommended dose for the 1st 3 days is only 25mg per day. Not really a memory loss, more of searching for the right name of something. I have tingling in my hands but I had some of that before drug due to pressure put on arm by leaning it on chair arm or desk top. I've noticed some problems with staying stable while walking. I found out buy taking does in smaller amount worked. I was given (by a licensed doc)100mg, every 4 hours. I trusted the doctor; I was just told it was a pain reliever like naprosin. When they did my EEG my whole head was full of seizure activity, not just | Not really a memory loss, more of searching for the right name of something. I have tingling in my hands but I had some of that before drug due to pressure put on arm by leaning it on chair arm or desk top. I've noticed some problems with staying stable while walking. I found out buy taking does in smaller amount worked. I normally take 300mg in the morning and 400 at night, when I had this problem I'd spread it out 200mg at a time to equal 700 a day. Now that part is fine. | F | 52 | 4 months | 12/12/2006 | 3 | Seizures from hemangioma in brain | After only one grand mal seizure caused from a small bleed in the brain this summer. My neurologist put me on generic dilantin 400 mg a day. Terrible eye problems. Could never seem to focus my eyes. Things seemed to be vibrating or moving when looking at them if the level got over 13. Also had joint pain. | Neurologist is now trying to wean me off. Still on 300 mg a day. She added to the dilantin, zonegran, 25 mg a week till I get to 200 mg. Not sure when she will bring the dilantin down. Now have the eye problem again, have terrible insomnia, feel awful! Any advice would be appreciated? | F | 36 | 5 months | 11/24/2006 | 5 | uncontrolled seizures | Wow- first drug I've had NONE. I'm pretty sure the teeth thing is coming as everybody gets it sooner or later and my dentist said "oh, you started dilantin- you're teeth are gonna be shot" but so far so good. =) I also take topamax and lamictal. My dose is 100mg in the morning and 200 mg in the evening. I weigh 103 lbs. My blood level sits at about 17 on average. | Topamax stopped my 'big' seizures. Lamictal slowed my partial complex seizures to 3-4 per month. VNS didn't do anything at all (getting it removed soon) Dilantin- is doing great! No real side effects so far, and I've only had 1 - 2 partial complex a month since starting it and every once and awhile had NONE! coooool =D | F | 28 | 1 years | 11/10/2006 | 3 | epilepsy/seizure disorder | hypertrophy of gums, fatigue, mimimal hair loss, later tingling & numbness in toes | i did take this drug since 1979. i bore 3 children. my last seizure@ the time was 12-30-86. later i was tapered off due to current protocol @ the time----=i had been seizure free for 18 yrs. all children were healthy. i recently -since 2004 started having seizures again & the MD's wanted me on lamictal because of all the side effects of dilantin. Lamictal is very expensive, insurance or not. i am not so sure i am happy with it because i have had 3 breakthrough seizures on it and i am also taking xanax. | F | 46 | 17 years | 11/9/2006 | 1 | petit & gran mal seizures | Swollen gums(entire duration), mood changes from happy to irritated/angry to depressed with occasional pondering suicide(entire duration), sleepy throughout entire day with constant yawning(entire duration) | I have had 3 blood test results in past 3 years come back with the need for decreasing dose due to level being too high. First result with high level, the day of the bloodwork was spent sleeping practically all day except for to walk to hospital to get blood drawn. As soon as the results came back, I was called and informed my levels were dangerously high, I believe my dose at the time was 300mg in AM and 400mg PM. The second high result I was taking 300mg AM and 300mg PM along with 500mg Keppra AM and 1000mg Keppra PM so they reduced my dosage yet again to 200mg AM and 300mg PM with 500mg Keppra AM and 1000mg Keppra PM. Alas, my last test result in June of '06 was high dilantin level again. Now I am currently taking 200mg AM and 200mg PM with 500mg Keppra AM and 1000mg Keppra PM. Low and behold my listed side effects are still evident. In my opinion, which exceeds just the usage of Dilantin, I would much rather be flopping on a floor in private or public than have to deal with t | M | 33 | 3 years | 11/8/2006 | 2 | 1 Seizure - Cavernous Malformation | I had a rash that started on my legs and eventually moved all of the way up to my face. It was all over my body. My doctor said the rash was not normal and switched me to Keppra. | I was very tired, had a terrible rash, terrible headaches. Very depressed - but that could also be because finding out about Cavernoma 2 weeks earlier. | F | 29 | 6 days | 10/20/2006 | 5 | 4+ gran mal seizures | Trouble with concentration, memory, and depression (but may also have to do with the removal of brain tumor). Haven't had a seizure since the surgery 1.5 years ago. Still taking 600 mg. Has anyone experienced any problems with rashes with Dilantin? | M | 29 | 3.5 years | 10/15/2006 | 4 | seizures | I had a seizure in my sleep my husband saw it.There are events and places that i know longer remember.I am always tired,at a loss for words,very poor short memory,jointpain,muscle aches,excess hair growth where you dont want it to grow!I think the worst side affect is trying to hold a conversation with somone and your mind goes blank.Every time i try to come off the medicine i have very strong auras where i feel very scared nausea loss of memory.I take 200mg before bed time i must get at least 8 hours sleep or i get more auras. | Dilantin has kept me seizure free for 4 years.I would not want to be with out it!I try to remind myself that there are other people that have alot more disabilities than i.I would like to talk to someone who has been pregnant while on dilantin. | F | 36 | 4 years | 10/13/2006 | 3 | unexplained seizures | loss of memory, problem finding the right words, tired after taking medication, some tremors in hands, feeling dizzy and a little clumsy especially when eyes are closed. | Taking 800 mg of dilantin a day to control gran mal and smaller seizures. It works but feeling tired makes it hard on me and everyone in my family. Family thinks I can just stop being tired and that I should just "cowboy up" and not display any of my symptoms. They think I am just acting lazy I think instead of exhibiting side effects of dilantin. I am not so sure that they might not be right and I just need to change my attitude---just be grateful I am not having as many seizures on this dose. | F | 43 | 2 years | 9/18/2006 | 5 | Temporal Lobe Epilepsy | Vertigo, numbness in feet, memory loss, depression, bad gums,ticks, hands shake, lack of concentration. | Dilantin with phenobarbital has kept me virtually seizure free. I have been able to lead a completely normal life. The only time the medicine didn't work was while I was pregnant, so I had a tubal ligation to prevent harm to my son. In recent months the side effects started to show up and a blood level test showed that I had overdosed on Dilantin. Until now, I did not know of any side effects except for the gum problem. | F | 57 | 43 years | 8/30/2006 | 4 | GRAND MAL EPILEPSY | INSOMNIA(1-3 HRS ON GOOD NITE)SEVERE CONSTIPATION (GOT WORSE OVER YRS), DIZZINESS & FEELING OF PASSING OUT(DR'S SAY CAUSE LEVELS ARE LOW), SORES IN MOUTH & BLEEDING, NUMBNESS & TINGLING OF FEET, PAINS IN STOMACH-DRS JUST THROW HANDS IN AIR WHEN I COMPLAIN | BEEN TAKING DILANTIN FOR OVER 50 YRS, NEVER KNEW TIL RECENTLY ABOUT HAVING LEVELS CHECKED ATLEAST EVERY 6 MONTHS. HAVE HAD APPROX. 2-3 SEIZURES SINCE TAKING DILANTIN. AT MY AGE I WISH I COULD JUST KNOW WHAT HEALTHY FEELS LIKE AGAIN BEFORE I PASS!! | M | 91 | 50 years | 8/21/2006 | 3 | Gran Mal & Simple Partial Seizures | Aches, pains in arms, legs, shoulders. Bottom of feet hurt/numb. Tired, little ambition, confusion, memory problems, arthritis symptoms. | I am taking 300mg/day of Phenytoin. I am not in theraputic level, but it controls seizures. All Gran Mal seizures happen at night. Sleep apnea is possible contributing factor if I sleep on my back. Stress is definite contributing factor. | F | 50 | 5 years | 7/29/2006 |