CELLCEPT Reviews (MYCOPHENOLATE MOFETIL)Average Rating: 3.5 (80 Ratings)Filter ResultsCompare CELLCEPT with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on CELLCEPT: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR CELLCEPT | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | systemic sclerosis (scleroderma) | Constant vomiting, diarrhea, severe esophagitis, hiatal hernia, fatigue, brain fog, malnutrition and dehydration, cardiac issues. Bone and muscle loss. Etc. Etc. | This medication nearly killed me. After nearly a year of constant pain vomiting diarrhea and suffering I finally stopped eating and drinking all together and ended up in the hospital three times. I now have eight more doctors, none of whom are willing to seriously discuss the horrible side effects of this medication. Their response is to try to get me to take other drugs that are just as scary and dangerous. | F | 64 | 2 years 500 mg 2X day | 4/2/2023 | 4 | Pemphigoid Gestationis | stomach pain | Helps significantly with autoimmune blistering disease (pemphigoid gestationis) but still getting minor flare ups. The only side effect is pretty bad stomach pain. | F | 40 | 60 days 1500 mg 2X day | 3/27/2022 | 4 | Birdshot uveitis | Loose stools, stomach pain, anxiety, extreme fatigue, moody and hair seems very dry now. | Will be on it for at least 3 years before doctor will consider weaning me off. Had a flare and increased dosage to 3000 mg from 2000mg. My biggest complaint is the constant fatigue and moodiness. | F | 57 | 6 months 1500mg 2X day | 10/10/2021 | 1 | Autoimmune hepatitis | High Anxiety, chest tightness, feeling like fainting, hot and cold sweats, panic attack, nausea, gag reflex. No appetite, food becomes very hard to eat. trouble sleeping due to the anxiety. | I'm not sure if many people experience mental health concerns while on this medication but it made my anxiety amplify times 100 when my dosage was increased from 250 to 500 a day. | F | 33 | 60 days 250 2X day | 8/23/2021 | 4 | Polymiositis | Nausea, Diarrhea, Increased Back pain. | It has increased my back pain fivefold. Nauseated but tolerable. It has help a lot with muscle pain and joint pain. | M | 49 | 4 months 1000 mg 2X day | 5/5/2021 | 4 | Myasthenia Gravis | Diarrhea, shortness of breath, | Slow to start working | M | 60 | 4 months 500 mg 2X day | 3/8/2021 | 5 | Sjogren/ ILD with bronchiectasis | In the past, blisters in the mouth, skin rashes, tiredness, myalgia, Now all resolved | It has been a life saver. I do not know what I would have done without it. My myalgia is controlled although I still have "tired eye syndrome " and eye infections and persistent Raynaud's | F | 53 | 5 years 1000g 2X day | 2/14/2021 | 3 | Sjoegrens | Numbness body aches headaches tiredness. Random times of mad sweating | Trying to use this to control autoimmune. Not sure if it's working really. Am tapering down prednisolone | F | 47 | 0 months 1000 2X day | 1/26/2021 | 1 | Lupus | Heart pounding, breathless, face tingling beneath surface of skin, nicety, fatique, feeling like having a seltzer tablet fizzing in stomach! | Began treatment 20mg prednisone which relieved me of chronic fibromyalgia symptoms that I have had for 15 years(newly diagnosed with lupus).such as joint stiffness and pain, numbness of extremities, and restored the energy I have missed for these many years. I understand that one cannot continue on prednisone fir a long period. This week I was prescribed 500mg 2 x a day and reduced prednisone to 15mg a day. Well, 1000mg created adverse effects! Called doctor and reduced to 500mg. Very unhappy with side effects as listed above. Since it takes. 6-12 weeks to benefit from Cellcept, I must decide if it is worth the side effects? | F | 77 | 6 days 500mg 1X day | 1/26/2021 | 4 | SLE | No side effects | Has worked great for my SLE. Stopped the progression of neuropathy up my leg! Also taking Plaquenil and IVIG. | M | 67 | 3 years 500 2X day | 12/1/2020 | 2 | Lupus | Insomnia, stomach problems, gas, itching, mood changes | I was on azathioprine for 4 years but had skin problems this year & switched to cellcept. It's affecting my moods, I've got no energy, no motivation, I feel subdued. I really don't like it | F | 42 | 3 months 1000mg 2X day | 11/29/2020 | 3 | SLE | Lately extreme hair loss, tiredness I also have cervical distonia and have had piercing feelings in legs dont know if this is a side effect of the cellcept or the distonia spreading to other parts of the body. My legs jumped in bed this morning. Don't know if this could be the cellcept making my distonia worse. Has anyone else have trouble with uncontrollable movements of muscles? | I don't trust this drug at all! | F | 64 | 1 years 500mg | 10/21/2020 | 3 | transplant | Cellcept has caused bad digestive issues and fatigue. Its a powerful immunosuppression also to help taper steroid but if my fatigue and stomach issues do not disappear i must stop it | M | 36 | 100 days 500 mg 2X day | 10/8/2020 | 5 | Lupus | Tolerance stomach upset, but limited to first 6 weeks. | F | 46 | 11 years 1000mg | 8/24/2020 | 2 | Mixed Connective Tissue Disease/Myo | Tried Imuran, Azathioprine, Methotrexate. Of these, side effects not as bad as Cellcept. Also tried monthly IVIG infusions which had the least side effects, however also the least beneficial. On Prednisone for approx 8 years ; cannot find a good alternative to corticosteroids. Also bad side effects there. But seems I cannot do without now. Best wishes everyone. | M | 56 | 14 days 500mg 2X day | 8/24/2020 | 2 | Lupus | Stomach issues Depression Anxiety Eyes dark and glossy Fatigue Shaky | 39 | 9 months 1000mg | 5/26/2020 | 4 | Lupus nephritis | Stomach pains, cramps, diarrhea | In the beginning, I started out taking 3000mg a day due to bad lupus flares. I am now down to 500mg a day for maintenance. | F | 36 | 3 years 1000mg | 4/29/2020 | 5 | Rheumatoid Arthritis | Initially stomach pain but after three weeks no side effects. | Taking generic noticed symptoms of stomach pain return when the manufacturer was change to Accord Healthcare from Roxane/west-war. I noted the symptoms to my doctor and pharmacy and have received Roxane/west-war NOT to be changed without notifying my doctor and me. | F | 75 | 2 years 500 mgm | 12/1/2019 | 4 | severe COPD | headaches, dizzy spells, constipation, stomach issues (like trapped gas) and a little nausea, high anxiety, achy body. | started cellcept in July as an alternative to prednisone. It was a gradual cellcept increase and prednisone decrease. Today I am prednisone free, but I am experiencing several side effects that i HOPE are temporary. I am tolerating it for now because I HAVE seen an improvement in my lung function tests. July i was at 34% and now at 41%. I have also lost weight but unfortunately its not a healthy weight loss. Stomach issue and constipation make it hard to enjoy your meals. | F | 53 | 4 months 2400 MG 1X day | 11/25/2019 | 3 | Kidney disease | Hair loss, loss of appetite, weight loss, fatigue, joint pain, anemia. Upset stomach during first month but that has subsided. Eat before you take the med. | I used to take Prograf and loved it for 20yrs but it stopped working as well. Then tried Acthar but it was too expensive so now I’m on Cellcept. | F | 40 | 3 months 500mg | 9/14/2019 |
CELLCEPT (MYCOPHENOLATE MOFETIL): Mycophenolate is used in combination with other medications to keep your body from attacking and rejecting your transplanted organ (such as kidney, liver, heart). It belongs to a class of medications called immunosuppressants. It works by weakening your body's defense system (immune system) to help your body accept the new organ as if it were your own. FDA Approval Date: 1995-05-03 (Sources: U.S. Centers for Medicare Services, FDA)